I am so happy to report that both of Jude's 3 month scans are officially clear! We actually just got home from Childrens Mercy South a little while ago and Dr. Lewing called me on the way home to let me know the good news. I cannot even begin to describe the relief Clint and I feel knowing that of right now Jude has been off treatment and cancer free for 3 months! I am also so grateful to Dr. Lewing for making sure we knew the results before the weekend. Simply put: I love that woman!
It's been a very long 7 days since we've been to Childrens Mercy South twice and Childrens Downtown once. Wednesday we were at clinic from 9:30am to 6:00pm because we had a tough time getting Jude's IV in. For some reason the first vein they tried blew, the second one took but was somehow a little messed up so the IV pump kept saying the medicine was done (which when you have 4/5hrs of medicine to go is not a good thing). So the eventually took that IV out, tried the other hand and that vein blew, and finally had to do the other arm without numbing cream since we had to get started. That was awful to watch because normally Jude is the easiest, most laid back patient ever. I think almost every time he's gotten stuck with a needle he says verbatim "I didn't even feel that!" - but Wednesday he felt all of them and was really upset(rightfully so). Then once we started the IVIg transfusion he started to react the same way as last time with his blood pressure dropping, but thankfully this time it only needed the rate to be slowed down to work. Thank goodness too because if this new type of IVIg didn't work then we were going to have to look into alternatives like doing shots at home - and for those who don't know me very well...Sarah doesn't like shots and especially will not do them to her kids. Aunt Carla is lucky this IVIg worked because she was going to have to be the bad guy:) Jude of course was a champ though. Needless to say, Target was definitely visited that evening :)
After Wednesday's whole ordeal I was so worried about having to stick him again today. Normally I would put the numbing cream on one arm before we left the house so it would be good and numb when we got there but I had no idea where to put it since both arms and both hands were bruised! So they have this neat little doo-dad and does an instant numbing thing - it actually sounds like when you open a can of soda. The tried one hand first - that vein blew and then luckily got it on the second try on his arm. I have no idea what is going on with his veins this week! We've never had this problem! And I know it's not the nurses because all the nurses we've had this weeks we've always had - and they rock. Actually there is this nurse at Childrens South who was the nurse that was with me when we found the tumor and I was all by myself. Funny enough I've ran into her here in Lee's Summit because she lives here. The more I am around CMH the more I'm convinced that 50% of the staff is from Lee's Summit. I know SOOO many people who work there - from a nurse on 4Henson that I grew up with, to the inpatient pharmacist that I went to high school with, to the administrative side where I know a couple of people, to tons of nurses in other departments throughout both hospitals! Small, small world.
Well I have to run because we've got to get the kids ready to ride in the firetruck with Mr. & Mrs. Claus tonight for the Downtown Lee's Summit Christmas Tree Lighting. I'll post pictures as soon as I can.
Thanks so much for all of your prayers, thoughts, and good vibes. We love you all so very much. We are also so thankful that Heavenly Father has once again blessed us with clear scans.
Lots of love,
Sarah
I am so happy to hear this! Yay for Jude! Please post pictures of your cute kiddos soon! I would love to see more Cancer Free Jude pictures:) Love you all!
ReplyDeleteSarah,
ReplyDeleteRyan and I wanted to check in to see how Jude was doing and are so happy to hear he is cancer free. I know you posted this months ago, and we have been thinking of you often - even more so that soccer is starting up again...and we finally checked the site to see how everything was coming. Such good news. Hope your family is doing well, and Jude continues to be in good health.
Sincerely, Ryan & Kelly Gerding